Smith-Magenis Syndrome -Taylor Bug Kisses Foundation

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About Us

Taylor Bug Kisses Foundation is a 501(c)3 charity that is dedicated to providing financial assistance, funding and hosting family respite camps, funding research and providing emotional support for families who have a child with Smith-Magenis Syndrome.

Our daughter Taylor (also known as Taylor Bug) has Smith-Magenis Syndrome. She has had many therapies, medical tests and medical appointments. So we know the expenses that can accrue. Fortunately, we have had medical coverage to cover all of these costs the last 10 years. But through our journey in the world of Smith-Magenis Syndrome we have met several families who do not have coverage for these expenses.  We wanted to help so Taylor Bug Kisses Foundation was born.

The Taylor Bug Kisses Foundation is named in honor of our Taylor Bug who can't get enough kisses!! She is full of love and has so much compassion for everyone and everything! She has been known to kiss the garbage can, the toilet, the vacuum, furniture, trees and other things that most people would not consider giving love to.  We are lucky to receive her kisses several times a hour, every day, all day! 

 

Upcoming Events

Monday, Jun 4 at 12:00 PM - Thursday, Jun 7 12:00 PM

Educational Video

 Online Support Group

 

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Disclaimer

Information on this site is intended for a general overview and for educational purposes. Information on this site is not intended to nor does it, constitute medical or other advice. Always consult with a physician before acting on any information you have read. Medical treatment for each individual should be in accordance to and followed by the patient's physician.