Smith-Magenis Syndrome -Taylor Bug Kisses Foundation

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Upcoming Events


Our annual 5k in Illinois will be May 17, 2014 at Tipton Park in Bloomingon, IL.  Registration begins at 9:00 a.m. and walk begins at 10:00 a.m.  

Fees are $20 (for ages 13 and older)  $5 (for ages 5-12) and Free (for children 4 and under)

You can register online here

Softball Tournament

Our first softball tournament will be held on May 31, 2014 in Normal, IL.

Location:  Champion Fields  501 N Parkside Rd, Normal, IL 61761

Fee:  $100 per team

Double elimination

Games to begin (TBA)

Family Respite Camp

Our second Family Respite Camp will be held at Wonder Valley Ranch and Retreat in Sanger, CA.  Dates are August 25-28, 2014.  

If you are interested in being a counselor, please contact Shannon at

We will be accepting family applications in April 2014.


Upcoming Events

Saturday, May 17 at 10:00 AM - 1:00 PM
Saturday, May 31 at 7:00 AM - 8:00 PM
Monday, Aug 25 at 12:00 PM - Thursday, Aug 28 12:00 PM

Educational Video

 Online Support Group


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Information on this site is intended for a general overview and for educational purposes. Information on this site is not intended to nor does it, constitute medical or other advice. Always consult with a physician before acting on any information you have read. Medical treatment for each individual should be in accordance to and followed by the patient's physician.